Suspended Mothering: Women's Experiences Mothering an Infant with a Genetic Anomaly Identified at Birth
Purpose: To develop an understanding of the experiences of women who give birth to an infant with a genetic anomaly not identified during the prenatal period.
Design: Exploratory design using selected qualitative methods.
Sample: Seven mothers of liveborn infants with a genetic anomaly characterized by physical attributes evident at birth.
Main Outcome Variable: Mother's expressions of suspended mothering.
Results: Two themes emerged that characterize the experience of suspended mothering: diminished maternal role and false protection.
Practice Recommendations: Facilitating maternal involvement in decision making requires giving women unbiased information in a supportive manner.
Document Type: Research Article
Publication date: August 1, 1999
- Neonatal Network is no longer available to subscribers on Ingenta Connect. Please go to http://connect.springerpub.com/content/sgrnn to access your online subscription to Neonatal Network.