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Predictors of Loss to Self-report Follow-up Data Collection in a Cancer Screening Intervention

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Objective: Losing participants' self-report data affects process and outcome analyses, and ultimate- ly, conclusions about results. In this paper, we examine predictors of loss to self-report data col- lection and attempt to identify potential predictors that can be addressed prospectively. Methods: Data were from a study to increase colorectal and breast cancer screening in women 50-75 years of age (N = 1196). We collected self-report data at baseline (T1), 4 weeks (T2), and 6 months (T3) after consent. Analyses identified predictors of earliest loss (T1 vs T1, T2, T3), intermediate loss (T1 vs T1, T2), and later loss (T1, T2 vs T1, T2, T3). Results: Cancer knowledge and self-reported screening barriers were associated with loss to follow-up. More health problems were associated with less intermediate loss to follow-up, but higher loss to later follow-up. Two intervention groups (Web Only, and Web + Phone) showed greater loss compared to Usual Care. Being overdue for both screenings predicted early loss. Completing the T1 survey by phone was associated with greater loss to follow-up. Conclusions: Knowledge and barriers may have had an early effect, whereas health problems might have had a delayed impact. Intervention characteristics also need to be considered as a source of task demands on participants.


Document Type: Research Article

Affiliations: 1: Behavioral and Social Sciences, School of Public Health, Brown University, Providence RI, United States 2: Department of Biostatistics, Indiana University School of Medicine and Richard M. Fairbanks School of Public Health, Indianapolis, IN, United States 3: Indiana University School of Nursing, Indianapolis, IN, United States 4: Indiana University School of Medicine, Department of Medicine, Indianapolis, IN, United States 5: Indiana University School of Nursing, Indianapolis, IN, United States.

Publication date: July 1, 2022

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  • Health Behavior and Policy Review is a rigorously peer-reviewed scholarly bi-monthly publication that seeks manuscripts on health behavior or policy topics that represent original research, including papers that examine the development, advocacy, implementation, or evaluation of policies around specific health issues. The Review especially welcomes papers that tie together health behavior and policy recommendations. Articles are available through subscription or can be ordered individually from the Health Behavior and Policy Review site.
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