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Open Access 'It's my diabetes': Co-production in practice with young people in delivering a 'perfect' care pathway for diabetes

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This paper considers how young people can help commissioners and providers better understand and address the options and barriers of delivering a perfect care pathway. This applied health study was funded by the National Institute of Health Research (NIHR) in England and a local clinical commissioning group (CCG) responsible for the organization and delivery of NHS services in a socially deprived, ethnically diverse urban locality. The research team was mixed – in terms of age, ethnicity, faith-identities and backgrounds – and worked together over one year to co-produce commissioning guidance. Guidance is intended for use by clinical commissioning groups to support them in commissioning health diabetes services. Our goal was to work with young people to help us understand the options and barriers they face when given a diagnosis of diabetes, and using NHS services. While our NHS partners can provide the latest medical and academic input into managing diabetes, young people have first-hand experience of managing diabetes, the highs and the lows, and only they can provide the inspiration for what would make the service better, now and in the future. With this focus in mind, young people joined the research team to help shape and implement new commissioning guidance. This paper offers the opportunity to reflect on the strengths and weaknesses in involving young people in health service design.

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Document Type: Research Article

Publication date: July 1, 2018

More about this publication?
  • Engagement with research goes further than participation in it. Engaged individuals and communities initiate research, advise, challenge or collaborate with researchers. Their involvement is always active and they have a crucial influence on the conduct of the research.

    Research for All is a peer-reviewed journal focusing on research that involves universities and communities, services or industries working together. Contributors and readers are from both inside and outside of higher education. They include researchers, policymakers, managers, practitioners, community-based organizations, schools, businesses and the intermediaries who bring these people together. The journal highlights the potential in active public engagement for robust academic study, for the development of involved communities, and for the impact of research. It explores engagement with different groups and their cultures, and features theoretical and empirical analysis alongside authoritative commentary to explore a range of themes that are key to engaged research including the development of reciprocal relationships, sector-specific communication and participatory action research. The journal is co-sponsored by the UCL Institute of Education and the National Co-ordinating Centre for Public Engagement.

    The journal welcomes relevant articles. See the publication homepage for details, or contact [email protected]

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