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The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support

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This article reports on research into the development of a website (Caregiverspro-MMD) intended for carers and people living with dementia. Carers, people living with dementia and healthcare practitioners were invited to explore a prototype of the website. Information was sought about: whether they thought the website would be useful; the functions and resources they would require; and their views about using an online resource. Interviews and focus groups identified support for engaging with peers online and accessing information. Concerns about online safety and the tone of websites were also indicated. Support for learning was also highlighted as a need for some.
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Keywords: carers; online technologies; people living with dementia; qualitative research

Document Type: Research Article

Affiliations: 1: University of Hull, UK 2: Queen’s University Belfast, UK

Publication date: November 2020

This article was made available online on July 29, 2020 as a Fast Track article with title: "The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support".

More about this publication?
  • The International Journal of Care and Caring (IJCC) is a new multidisciplinary journal designed to advance scholarship and debate in the important and expanding field of care and caring. Multidisciplinary and international in scope, it publishes high quality contributions on care, caring and carers from all regions of the world. IJCC has a broad focus, covering care and caring for people of any age who have long-term conditions, disabilities or frailties, or who are seriously ill or near the end of life. It explores the economic, organisational, political, social, legal, familial, transnational and ethical settings in which this care occurs.

    IJCC is concerned with care provided as paid work and as support for family members, friends or neighbours; with care in home, community and residential settings; and with formal and informal care relations, organisation, systems and markets. It focuses on 'receiving' and 'giving' care and on the gendered nature and social, political, legal and economic status and circumstances of care and caring. It debates the support needed in localities, workplaces and health systems to make care and caring feasible and rewarding for carers and dignified and supportive of independence for care recipients. IJCC welcomes contributions on caring relationships, the ethics and political economy of care, care as a focus of moral philosophy and feminist analysis and care and caring as sources of claims-making and challenge and as the spur for national and global social movements.

    The journal encourages critical engagement with policy and practice developments and aims to include contributions from different areas of the world in each edition. Its regular Debates and Issues section features dialogue with carers’ organisations, policymakers, trade unions, employers and academics, to encourage global dialogue and international sharing of ideas, expertise and experience.

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