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Hidden Carers? a Scoping Review of the Needs Of Carers of People with HIV in the Contemporary Treatment Era

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The role of carers in supporting people with HIV is largely hidden in Western countries in the contemporary era of antiretroviral treatments. Little is known about their needs. A scoping review was undertaken to describe the research available on the needs of this group and identify gaps in existing knowledge. Findings reveal that carers of people with HIV have similar needs to other carers but are currently mostly invisible to support services. The article suggests that the discourse of independence underpinning the new HIV treatment era may be difficult for carers to 'disrupt' by naming what they do as 'care'.
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Keywords: CARE; HIDDEN CARERS; HIV; STIGMA

Document Type: Research Article

Affiliations: 1: Email: [email protected] 2: Email: [email protected] 3: Email: [email protected] 4: Email: [email protected] 5: Email: [email protected] 6: Email: [email protected] 7: Email: [email protected]

Publication date: 01 December 2018

More about this publication?
  • The International Journal of Care and Caring (IJCC) is a new multidisciplinary journal designed to advance scholarship and debate in the important and expanding field of care and caring. Multidisciplinary and international in scope, it publishes high quality contributions on care, caring and carers from all regions of the world. IJCC has a broad focus, covering care and caring for people of any age who have long-term conditions, disabilities or frailties, or who are seriously ill or near the end of life. It explores the economic, organisational, political, social, legal, familial, transnational and ethical settings in which this care occurs.

    IJCC is concerned with care provided as paid work and as support for family members, friends or neighbours; with care in home, community and residential settings; and with formal and informal care relations, organisation, systems and markets. It focuses on 'receiving' and 'giving' care and on the gendered nature and social, political, legal and economic status and circumstances of care and caring. It debates the support needed in localities, workplaces and health systems to make care and caring feasible and rewarding for carers and dignified and supportive of independence for care recipients. IJCC welcomes contributions on caring relationships, the ethics and political economy of care, care as a focus of moral philosophy and feminist analysis and care and caring as sources of claims-making and challenge and as the spur for national and global social movements.

    The journal encourages critical engagement with policy and practice developments and aims to include contributions from different areas of the world in each edition. Its regular Debates and Issues section features dialogue with carers’ organisations, policymakers, trade unions, employers and academics, to encourage global dialogue and international sharing of ideas, expertise and experience.

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