Paediatric Hip Conditions: Psychosocial and economic dimensions of impact on quality of life – ESRC
1. Develop a fuller understanding of the QoL impact of PHCs across the life-course, centred on the experiences and perspectives of persons with these conditions and their significant others.
2. Enable clinicians and academics currently engaged in the care or research surrounding PHC to share perspectives and ideas with persons with these conditions and learn from research in other paediatric conditions with long-lasting impact,
3. Develop ways to raise awareness of the patient and family perspective across the treatment and caring professions
4. Share and exchange multi-disciplinary knowledge around the treatment and care of PHCs both within and between parts of the UK, European and the USA
5. Explore economic-related, educational and body image dimensions of living with a PHC condition over time
6. Develop supportive strategies to embed successfully the assessment of patient concerns and impact of the conditions into routine clinical practice across the life-course.
Six, one-day interactive seminars, with informative pre-circulated presentations, will be undertaken, concluding with action points:
i. Uncovering the Expert Patient/Lay and Familial Perspective
ii. Measuring the Concerns, Consequences and QoL Impact of PHC:
iii. International Healthcare Diagnosis and Treatment Approaches: Clinical Perspectives: Monitoring and Assessing Outcomes of PHC within Routine Practice
iv. Childhood and Young Persons Impact on Schooling and Social Participation
v. Communicating, Awareness and Support for Persons with PHC
A key benefit will be development of an inter-disciplinary research agenda in this emerging field which moves beyond the surgical and clinical perspective to embrace the person with a PHC and their family. A dialogue during and after the seminar series will be supported by a website providing seminar papers, discussion forums and links to proposed research. We will link this to existing hip, charitable and patient forums. The creation of a strong research network and action plans ensures its sustainability and future collaboration.
Document Type: Research Article
Publication date: November 1, 2017
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