While death is a universal human experience, the process of planning for death can be difficult and may be avoided altogether. To understand community perspectives of end-of-life preparedness, we undertook a multimethod study exploring the experiences of 25 community members and 10
stakeholders engaged in end-of-life planning. In addition, card sorting activities and focused discussions with 97 older adults were undertaken to highlight perspectives and needs. Data were analyzed using descriptive statistics and qualitative description. Overall, the participants perceived
many benefits to being end-of-life prepared, however, few community members had engaged in formal planning. Key barriers include concerns about the accessibility and accuracy of information, discomfort when engaging in end-of-life conversations, and perceptions about the cost associated with
engaging in formal legal or financial preparations. Areas for further research include the need for studies that capture the cultural dimensions of end-of-life planning and explores the implementation and evaluation of community-based interventions to improve preparedness.
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Document Type: Research Article
School of Nursing, University of Northern British Columbia, Prince George, BC, Canada
School of Social Work, University of Northern British Columbia, Prince George, BC, Canada
School of Health Sciences, University of Northern British Columbia, Prince George, BC, Canada
Prince George Hospice Society, Prince George, BC, Canada
April 21, 2019
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