This study critically examines the concepts of dignity and liminality at the end-of-life, in an effort to better understand the processes of healing within suffering among Chinese terminal cancer patients receiving palliative care services in Hong Kong. Meaning-oriented interviews were
conducted with 18 Chinese terminal patients, aged 44 to 98, to elicit the narratives and stories of their illness experience. All interviews were analyzed using grounded theory and supplemented by ethnographic observations and field notes. Two major themes and eight subprocesses of healing
adopted by patients to achieve and maintain dignity were identified: (a) personal autonomy, which encompasses the need to (i) regain control over living environments, (ii) maintain self-sufficiency despite institutional care, (ii) make informed care decisions to reduce sense of burden, and
(iv) engage in future planning to create a lasting legacy; and (b) family connectedness, which encompasses the need to (i) maintain close ties with family members to express appreciation, (ii) achieve reconciliation, (iii) fulfill family obligations, and (iv) establish a continuing bond that
transcends generations. Implications of these themes for advanced care planning and life review interventions were discussed with the goal of enhancing patient autonomy and family connectedness, and thereby providing structure and meaning for Chinese terminal patients and their families at
the end of life.
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Document Type: Research Article
Centre on Behavioral Health and Department of Social Work & Social Administration, University of Hong Kong, Hong Kong, China
Department of Medicine & Geriatrics & ICU, Caritas Medical Centre, Hong Kong, Hong Kong, China
School of Nursing, Hong Kong Polytechnic University, Hong Kong, China
Manitoba Palliative Care Research Unit, University of Manitoba, Winnipeg, Canada
Department of Psychology, University of Memphis, Memphis, Tennessee, USA
November 1, 2013
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