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Open Access From the Person's Perspective: Perceived Problems in Functioning Among Individuals with Spinal Cord Injury in Switzerland

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Objective: To report the main problems in functioning cited by people with spinal cord injury in Switzerland.

Study design: Post-coding analysis was conducted based on the open-ended question, “What causes you the most problems since your spinal cord injury?” from the Starter Module of the community survey of the Swiss Spinal Cord Injury Cohort Study, administered between September 2011 and March 2013.

Study participants: Out of 3,144 eligible subjects, 1,762 answered the open-ended question and cited problems.

Methods: Thematic analysis was used, based on the coding system from the International Classification of Functioning, Disability and Health.

Results: The study identified the 10 problems cited most by the participants, and the 5 most-cited problems mentioned by participants from each of the relevant subgroups subdivided by factors including gender and aetiology. Problems linked to complications in body functions (e.g. pain), activities and participation (e.g. leisure) and environment (e.g. design of public buildings) were reported as important.

Conclusion: This study contributes to priority setting in spinal cord injury by accounting for the person perspective within a large-scale quantitative survey. The results support the value of a comprehensive approach to spinal cord injury.

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Keywords: DISABILITY AND HEALTH; FUNCTIONING; INTERNATIONAL CLASSIFICATION OF FUNCTIONING; LIFE EXPERIENCES; QUALITATIVE RESEARCH; SPINAL CORD INJURY

Document Type: Research Article

Publication date: February 1, 2016

More about this publication?
  • Journal of Rehabilitation Medicine is the international peer-reviewed journal published in English, with at least 10 issues published per year.

    Original articles, reviews, case reports, short communications, special reports and letters to the editor are published, as also are editorials and book reviews. The journal strives to provide its readers with a variety of topics including: functional assessment and intervention studies, clinical studies in various patient groups, methodology in physical and rehabilitation medicine, epidemiological studies on disabling conditions and reports on vocational and sociomedical aspects of rehabilitation.

    The journal is read by a wide group of healthcare professionals including specialists in rehabilitation medicine, neurology, clinical neurophysiology, general medicine, psychologists, physiotherapists, occupational therapists and social workers.

    Contributions from all parts of the world and from different professions in rehabilitation are welcome.

    ISI Impact Factor 2009: 1.882.

    Owned by Foundation of Rehabilitation Information.

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