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User-led Research: A Global and Person-Centered Initiative

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This paper shows how a global and person-centered approach can be used to support a participatory research agenda that would be as 'user-led' as possible. One aspect of applying such a participatory approach to research on mental health services is discussed: the role of mental health service users engaged as research partners in a participatory research initiative with policy and decision makers and researchers. The results of a survey and a focus group are discussed. Their collective interpretation suggests that this initiative became more in line with the principles of participatory research as the engagement of service users grew over time. Thirty possible research themes were identified by this group, and would guide future research collaboration. This evolution may be due to commentaries from some service users such as this: 'For the first time, we are also on the upper end of the microscope, no longer the only ones underneath the lenses'.
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Keywords: COMMUNITY-BASED PARTICIPATORY RESEARCH; GLOBAL MODEL; INTEGRATED KNOWLEDGE TRANSLATION; RECOVERY; USER-LED RESEARCH

Document Type: Research Article

Publication date: 01 February 2011

More about this publication?
  • The International Journal of Mental Health Promotion co-ordinates the dissemination of new research outcomes to all those involved in policy making and the implementation of mental health promotion and mental disorder prevention policies. It is essential reading for those with a personal or professional interest in this work.

    Peer reviewed by an expert international board, the Journal is a comprehensive information system which publishes material of distinction submitted by clinical/medical staff, health services researchers, managers, health promoters, educationalists, sociologists, health economists and practitioners from all branches of health and social care.

    The International Journal of Mental Health Promotion is designed to increase awareness, foster understanding and promote collaboration between the different disciplines engaged in this diverse activity of study.

    The International Journal of Mental Health Promotion is published four times a year and is an official research journal of The International Union for Health Promotion and Education (IUHPE).

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