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Service Delivery to Parents with an Intellectual Disability: Family-Centred or Professionally Centred?

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Studies support the use of family-centred practices in service delivery to families where a parent has an intellectual disability. This paper examines the importance of such practices to parents. Materials and Methods 

Interview responses from 32 parents with intellectual disability were coded by two independent raters as reflecting family-centred or professionally centred practice. Responses reflecting family-centred practice were then coded as ‘relational’ or ‘participatory’ helpgiving. Results 

Service characteristics considered helpful by parents were more likely to be rated as family-centred practice than professionally centred practice. Family-centred practices considered helpful were more likely to be coded participatory than relational helpgiving. Conclusions 

The results support the conclusion that parents find family-centred practices more helpful than professionally centred practices, and participatory helpgiving more helpful than relational helpgiving. The findings are discussed in relation to the tendency for an ‘implementation lag’ in service delivery to families.
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Keywords: family-centred; helpgiving; parents; service delivery

Document Type: Research Article

Publication date: March 1, 2007

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