If you are experiencing problems downloading PDF or HTML fulltext, our helpdesk recommend clearing your browser cache and trying again. If you need help in clearing your cache, please click here . Still need help? Email help@ingentaconnect.com

Parental Information Seeking Following a Positive Newborn Screening for Cystic Fibrosis

$53.91 plus tax (Refund Policy)

Buy Article:


This investigation focused on the information-seeking behaviors of parents (N = 38) whose newborn had received a positive screening result for cystic fibrosis. Roughly half of the participants actively sought information about their child's potential disease prior to the clinic visit. The most common sources of information were the Internet, pediatricians, and family physicians. Analysis of behavior during the clinic visit showed rates of question asking that were judged as low, but they were comparable to the results of other studies. It was observed that parents occasionally would collaborate in the production of a single question. More educated parents tended to produce such questions more frequently. Importantly, frequency of collaborative questions was positively correlated with enhanced knowledge of cystic fibrosis six weeks after the clinic visit and with apparent dissatisfaction with the counseling interaction.

Document Type: Research Article

DOI: http://dx.doi.org/10.1080/10810730.2010.522226

Affiliations: 1: Department of Communication Arts & Sciences, The Pennsylvania State University, University Park, Pennsylvania, USA 2: Department of Speech Communication, University of Georgia, Athens, Georgia, USA 3: Department of Communication, Portland State University, Portland, Oregon, USA 4: Department of Pediatrics, University of Wisconsin-Madison, Madison, Wisconsin, USA

Publication date: December 1, 2010

More about this publication?
Related content

Share Content

Access Key

Free Content
Free content
New Content
New content
Open Access Content
Open access content
Subscribed Content
Subscribed content
Free Trial Content
Free trial content
Cookie Policy
Cookie Policy
ingentaconnect website makes use of cookies so as to keep track of data that you have filled in. I am Happy with this Find out more