BARRIERS TO ACCESSING HOSPICE SERVICES BEFORE A LATE TERMINAL STAGE

Authors: Johnson C. B.; Slaninka S. C.

Source: Death Studies, Volume 23, Number 3, 1 April 1999 , pp. 225-238(14)

Publisher: Routledge, part of the Taylor & Francis Group

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Abstract:

Although hospice care has been available in the United States for over 25 years , the trend of late terminal access persists . Quality assessments and interventions that will continue through a year of bereavement are based on early interactions and the formation of caring and trusting bonds . A qualitative research study was conducted to identify and describe barriers to timely access as perceived by those involved in hospice care: caregivers , hospice staff and volunteers , and referring physicians . Major findings include persistent knowledge deficits including misconceptions and lack of awareness of components and skill associated with hospice care: reluctance to disclose , discuss , or acknowledge patient terminality , and access of hospice care being perceived as giving up on the patient.

Language: English

Document Type: Research article

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