Negotiating Dis/Ability in Families: Constructions and Contradictions

This project uses a narrative view of identity to interrogate how individuals construct notions of ability and disability within their families. Participants include children with disabilities from diverse ethnic backgrounds, their parents, siblings, and extended family members. Interactions within four families are explored as well as interactions family members have with people outside their families. Interview and observational data demonstrate ways that participants construct identities that highlight intersections of ability/disability and individuality/relationships. Results indicate that families primarily construct identities of “normal” through their interactions and routines as they negotiate contradictions inherent in their everyday lives. Theoretic implications of narrative dimensions of constructions and contradictions are offered. Finally, practical applications for professionals and families of children with disabilities are suggested with future directions for research and practice.