HIV-related stigma and health-related quality of life among children living with HIV in Sweden
The relationship between HIV-related stigma and health-related quality of life (HRQoL) among children living with HIV infection is unknown. The objectives of this study were to describe HIV-related stigma and HRQoL among children with perinatal HIV living in Sweden, and to investigate
the relationship between these two factors in the same infection group. In a cross-sectional nationwide survey, HIV-related stigma was measured with the 8-item HIV Stigma Scale for Children. HRQoL was measured with the 37-item DISABKIDS Chronic Generic Module. Structural equation modeling
was used to explore the relationship between HIV-related stigma and HRQoL. Fifty-eight children participated, age 9–18 years (mean = 13.9). The HIV stigma general scale showed a mean score of 17.6 (SD = 5.0; possible range 8–32). DISABKIDS Chronic Generic Module general scale showed
a mean score of 80.7 (SD = 14.1; possible range 0–100). HIV-related stigma was negatively associated with HRQoL (standardized β = −0.790, p = .017). The results indicate that children's concerns related to disclosure of their HIV infection seem to be common (i.e.
75% agreed) which, together with the negative association between ratings of HIV-relatively stigma and HRQoL, might indicate that disclosure concerns would be a relevant target for interventions to decrease HIV-related stigma and increase HRQoL.
Keywords: Children; HIV; health-related quality of life; stigma
Document Type: Research Article
Affiliations: 1: Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden 2: Karolinska University Hospital, Astrid Lindgren Children's Hospital, Stockholm, Sweden
Publication date: 03 May 2016
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