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Issues in Biomedical Research: What Do Hispanics Think?

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Abstract:

Objective: To examine barriers and facilitators of biomedical research participation among Hispanics in a rural community in Washington State. Methods: Questionnaires addressed socio-demographics, health care access, and barriers and facilitators of participation in biomedical studies. This is a descriptive analysis of the findings. Results: Barriers include the need to care for family members (82%), fear of having to pay for research treatments (74%), cultural beliefs (65%), lack of time (75%) and trust (71%), and the degree of hassle (73%). Facilitators include having a friend/relative with the disease being researched (80%) and monetary compensation (73%). Conclusion: Researchers should be mindful of these facilitators and barriers when recruiting for biomedical research studies.

Keywords: BIOMEDICAL RESEARCH; HISPANIC; RECRUITMENT; RESEARCH ETHICS

Document Type: Research Article

DOI: http://dx.doi.org/10.5993/AJHB.37.1.9

Affiliations: 1: Cancer Prevention Research Program, Fred Hutchinson Cancer Research Center, Seattle, WA, USA. aulrich@fhcrc.org 2: Cancer Prevention Research Program, Fred Hutchinson Cancer Research Center, Seattle, WA, USA 3: Mt. Sinai School of Medicine, Department of Health Evidence and Policy, New York, NY, USA 4: McKusick-Nathans, Institute of Genetic Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA 5: The Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA

Publication date: January 1, 2013

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  • The American Journal of Health Behavior seeks to improve the quality of life through multidisciplinary health efforts in fostering a better understanding of the multidimensional nature of both individuals and social systems as they relate to health behaviors.

    The Journal aims to provide a comprehensive understanding of the impact of personal attributes, personality characteristics, behavior patterns, social structure, and processes on health maintenance, health restoration, and health improvement; to disseminate knowledge of holistic, multidisciplinary approaches to designing and implementing effective health programs; and to showcase health behavior analysis skills that have been proven to affect health improvement and recovery.

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