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Quality of life in patients with blepharospasm

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Objectives– Administration of botulinum neurotoxin A (BONT/A) is a common and effective treatment of blepharospasm. There is, however, no information regarding the emotional and social well-being of patients with blepharospasm and patient acceptance of BONT/A therapy. The purpose of this study was to investigate aspects of quality of life of patients with blepharospasm and level of patient satisfaction with treatment. Material and methods– Fifty-one patients with blepharospasm who had been treated with BONT/A for years completed a questionnaire providing information about quality of life. Results– Results revealed reductions in social and emotional well-being of patients but, nonetheless, good acceptance of BONT/A therapy. The positive effects of BONT/A therapy were, however, accompanied by fear of a decreasing effect of BONT/A injections. Conclusion– Although the objective findings following BONT/A injections in the treatment of blepharospasm are appreciated by the patients, their well-being is affected by fears and depression.
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Keywords: blepharospasm; botulinum toxin; emotional well-being; quality of life; social well-being

Document Type: Short Communication

Affiliations: 1: Department of Neuropsychology, University of Regensburg, Regensburg, Germany, 2: Department of Neurology, University of Würzburg, Würzburg, Germany

Publication date: 2001-01-01

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