Health Inequities Experienced by Aboriginal Children With Respiratory Conditions and Their Parents Les inégalités en matière de santé que connaissent les enfants autochtones ayant des troubles respiratoires et leurs parents

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Abstract:

Asthma and allergies are common conditions among Aboriginal children and adolescents. The purpose of this study was to assess the health and health-care inequities experienced by affected children and by their parents. Aboriginal research assistants conducted individual interviews with 46 Aboriginal children and adolescents who had asthma and/or allergies (26 First Nations, 19 Métis, 1 Inuit) and 51 parents or guardians of these children and adolescents. Follow-up group interviews were conducted with 16 adolescents and 25 parents/guardians. Participants reported inadequate educational resources, environmental vulnerability, social and cultural pressures, exclusion, isolation, stigma, blame, and major support deficits. They also described barriers to health-service access, inadequate health care, disrespectful treatment and discrimination by health-care providers, and deficient health insurance. These children, adolescents, and parents recommended the establishment of culturally appropriate support and education programs delivered by Aboriginal peers and health professionals.

French
L'asthme et les allergies sont des affections courantes chez les enfants et les adolescents autochtones. Cette étude a pour objet d'évaluer la santé des enfants touchés ainsi que les inégalités en matière de soins de santé dont ceux-ci et leurs parents font l'objet. Des assistants de recherche autochtones ont mené des entrevues individuelles auprès de 46 enfants et adolescents autochtones qui souffraient d'asthme ou d'allergies (26 des Premières Nations, 19 Métis, 1 Inuit) et auprès de 51 parents ou tuteurs de ces enfants et adolescents. Des entrevues de suivi ont été réalisées en groupe auprès de 16 adolescents et 25 parents/tuteurs. Les participants ont fait état de ressources pédagogiques inadaptées, de vulnérabilité environnementale, de pressions sociales et culturelles, d'exclusion, d'isolement, de stigmatisation, de blâme et de graves lacunes sur le plan du soutien. Ils ont aussi décrit les obstacles à l'accès aux services de santé, les soins de santé inadéquats, le manque de respect et la discrimination dont font preuve les fournisseurs de soins de santé et les carences de l'assurance-maladie. Ces enfants, adolescents et parents ont recommandé que soient instaurés un soutien et des programmes d'éducation culturellement appropriés offerts par des pairs et des professionnels de la santé autochtones.

Keywords: ABORIGINAL HEALTH; ACCESS TO CARE; CHRONIC ILLNESS; HEALTH DISPARITIES; PSYCHOSOCIAL ASPECTS OF ILLNESS; VULNERABLE POPULATIONS

Document Type: Research Article

Publication date: September 1, 2013

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  • CJNR is a peer-reviewed, quarterly journal published by the McGill University School of Nursing since 1969. With world-wide circulation, CJNR's primary mandate is to publish original nursing research that develops basic knowledge for the discipline and examines the application of the knowledge in practice. Research related to education and history is also welcomed, as are methodological, theoretical, and review papers that advance nursing science. Letters or commentaries about published articles are encouraged. Learn more.
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