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Core Aspects of “Empowering” Caregivers as Articulated by Leaders in Home Health Care: Palliative and Chronic Illness Contexts Principaux aspects de l'autonomie des aidants d'après les chefs de file en matière de soins à domicile : soins palliatifs et maladie chronique

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Abstract:

Home-based family caregivers are often assisted by home care services founded upon principles of health promotion, such as empowerment. Using an interpretive approach and in-depth qualitative interviews, the authors examine descriptions of family empowerment by leaders and managers in the field of home health care in the province of British Columbia, Canada. In a culture of fiscal restraint, dying at home, and self-care, participants described how home care nurses empower family caregivers to meet these objectives. This involves educating and informing caregivers, engaging them in planning and decision-making, and reassuring them that their role is manageable and worthwhile. Though some participants viewed providing supports as empowering (e.g., during times of crisis), others viewed them as disempowering (by promoting dependence). Empowered caregivers were characterized as able to provide home care, confident of their capabilities, and believing that their work is positive and beneficial. The long-term goal of empowerment was characterized as client self-care and/or family care and decreased dependence on formal services.

French
Les personnes qui s'occupent d'un membre de la famille à domicile reçoivent souvent l'assistance d'un service de soins, dont le but est de promouvoir la santé en renforçant l'autonomie des individus. Pour cette étude, les auteurs ont choisi une approche interprétative et une série d'entretiens qualitatifs approfondis. Ils ont examiné la façon dont les chefs de file et les gérants dans le domaine des soins à domicile décrivaient comment ils renforçaient l'autonomie des aidants dans la province de la Colombie-Britannique (Canada). Dans un contexte de restrictions budgétaires où les individus préfèrent se soigner eux-mêmes et mourir à domicile, les participants à l'étude ont décrit comment les infirmières à domicile les aidaient à devenir autonomes. Elles éduquent et informent les aidants, les font participer à la planification et à la prise de décision et les rassurent en leur disant que leur rôle est gérable et appréciable. Si certains participants considéraient que leur autonomie était renforcée (en temps de crise, p. ex.), d'autres pensaient le contraire (l'aide qu'ils recevaient encourageait leur dépendance). On considérait qu'un aidant était autonome quand il était capable de fournir des soins à domicile, avait confiance en ses capacités et pensait que son travail était positif et utile. À long terme, le renforcement de l'autonomie se traduisait par des clients qui étaient capables de se soigner eux-mêmes ou de s'occuper d'un membre de leur famille et qui étaient beaucoup moins dépendants des services officiels.

Keywords: EMPOWERMENT; FAMILY CAREGIVERS; HOME CARE NURSING; HOME HEALTH SERVICES

Document Type: Research Article

Publication date: September 1, 2011

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