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Experiences of Rural Family Caregivers Who Assist With Commuting for Palliative Care L'expérience des soignants familiaux en région rurale en matière de transport des patients en soins palliatifs

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Abstract:

Commuting for advanced cancer care is an important option for rural patients who require palliative treatment. The purpose of this qualitative descriptive study was to investigate the experiences of rural family palliative caregivers (FPCs) who supported advanced cancer patients receiving palliative treatment at a regional cancer centre. Semi-structured interviews were conducted with 15 FPCs (27–73 years of age) who commuted with family members. Rural life, the multiple responsibilities borne by FPCs, the availability of support networks, and the culture of the regional cancer centre were all relevant contextual factors. The dedication of FPCs to making the commuting experience as positive as possible for the patient was the central theme. Subthemes were , and . The authors offer recommendations for self-care, nursing practice, and future research.

French
Le transport est une question importante pour les patients des régions rurales qui sont atteints de cancer avancé et reçoivent des soins palliatifs. Cette étude qualitative de nature descriptive visait à explorer les expériences des soignantes et soignants familiaux qui s'occupent d'un proche recevant des soins palliatifs avancés dans un centre de traitement régional. On a mené des entrevues auprès de 15 soignantes et soignants (âgés de 27 à 73 ans) qui accompagnent un proche à ses rendez-vous. La vie en région, les multiples responsabilités en matière de soins, la présence d'un réseau social et la culture du centre régional de traitement constituent des facteurs contextuels pertinents. Un grand thème se dégage des entrevues : le souci de faire en sorte que les déplacements soient les plus agréables possibles pour les patients. Parmi les sous-thèmes, soulignons : la planification requise pour parer à toute éventualité; les expériences sur la route; le fardeau des déplacements pour les soignantes et soignants; la volonté de tirer le meilleur parti de la situation. Les auteures formulent des recommandations en matière de soins auto-administrés, de prestation des soins infirmiers et de recherche.

Keywords: CANCER; CAREGIVING; ENVIRONMENT AND HEALTH; FAMILY HEALTH CARE; PALLIATIVE CARE; RURAL AND REMOTE HEALTH CARE

Document Type: Research Article

Publication date: March 1, 2010

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