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Open Access Nature, Sources, and Impact of Information on the Adjustment of Family Caregivers: A Pilot Project La nature, les sources et l'impact de l'information sur la capacité d'adaptation des aidants naturels : un projet pilote

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Abstract:

The information conveyed to patients and families dealing with a health problem such as traumatic brain injury or stroke combines with what they already know to form a new pool of knowledge. The aim of this pilot study was to describe the information needs of family caregivers, their sources of information, their strategies for gathering information, and the impact of the information on their adjustment and their relationship with health professionals. Focus groups were held with close relatives of persons who had sustained a traumatic brain injury or a stroke and with health professionals from various disciplines working with theses clienteles. The information needs of relatives concerned the impact of the person's disabilities on their everyday lives. From the professionals' point of view, the information needs of close relatives concerned the person's disabilities, their coping strategies, and their information sources. Life experience was the main source of knowledge. The results form a basis for recommendations regarding interventions in acute care and rehabilitation.

French
L'information transmise aux patients et aux familles aux prises avec des troubles de santé comme un traumatisme crânien ou un accident vasculaire cérébral (AVC) s'ajoute à ce que ces personnes savent déjà pour former un corpus de connaissances. Cette étude avait pour objectif d'identifier les besoins des aidants naturels en matière d'information, leurs sources d'information, leurs stratégies de cueillette d'information et l'impact de celle-ci sur leur capacité d'adaptation et leur lien avec les professionnels de la santé. Des groupes de discussions auxquels participaient des proches parents de personnes atteintes de traumatisme crânien ou d'un AVC ainsi que des professionnels de la santé de diverses disciplines travaillant avec cette clientèle ont été menés. Les besoins en information des proches parents portaient sur l'impact du handicap de la personne atteinte sur leur vie quotidienne. Selon le point de vue des professionnels, les besoins des proches portaient sur les incapacités de la personne, leurs stratégies d'adaptation et leurs sources d'information. L'expérience de la vie constituait la principale source de connaissances. Des recommandations en matière d'intervention en soins actifs et de réadaptation ont été émises à partir des résultats de l'étude.

Keywords: FAMILIES; HEAD INJURY; HEALTH; HEALTH PROFESSIONALS; KNOWLEDGE; STROKE

Document Type: Research Article

Publication date: 2008-03-01

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