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Open Access Giving Voice to Informal Caregivers of Older Adults Donner la parole aux aidants naturels qui s'occupent de personnes âgées

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Abstract:

This study focused on the experiences of informal caregivers of older adults and explored whether employment, use of home-care services, or other factors influence the health of caregivers and their ability to manage their caregiving and other responsibilities. Focus groups conducted with 26 caregivers and personal interviews with 4 caregivers identified 12 themes under 5 conceptual areas: caregiver health, relationships, independence, employment, and use of home-care services. The findings reveal that caregiving coupled with other responsibilities can have serious health effects. Participants spoke of the tenuous balance of decision-making control between caregiver and care recipient. Many caregivers expressed a desire to be included as part of the formal health-care team. Implications for nursing are discussed.

French
Ce projet avait pour but d'explorer les facteurs susceptibles d'influer sur la santé des aidants naturels qui s'occupent de personnes âgées, tels que l'emploi et le recours aux services de soins à domicile, ainsi que sur la capacité d'assumer cette charge et d'autres responsabilités. Vingt-six soignants ont participé à des groupes de discussion et quatre à des entretiens personnels. Les auteures ont cerné 12 thèmes qu'elles ont répartis en 5 catégories conceptuelles : santé de l'aidant naturel; relations; autonomie; emploi; recours aux services de soins à domicile. D'après les résultats, lorsqu'elle s'ajoute à d'autres responsabilités, la charge des soins peut avoir de graves répercussions sur l'état de santé du soignant. Les participants ont évoqué l'équilibre délicat qui caractérise la prise de décisions entre soignant et bénéficiaire des soins. Nombre d'entre eux ont manifesté le désir d'être intégré à l'équipe soignante proprement dite. L'article se termine sur une discussion des implications de l'étude pour les soins infirmiers.

Keywords: CAREGIVER HEALTH; CAREGIVING; COMMUNITY SERVICE USE; HOME CARE; INFORMAL CAREGIVERS; OLDER ADULTS

Document Type: Research Article

Publication date: 2007-03-01

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