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Open Access Strategies for Moving Beyond the Illness in Early Schizophrenia and in Chronic Kidney Disease Des stratégies pour distancer la maladie: les cas de la schizophrénie précoce et des maladies chroniques du rein

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Abstract:

Although the literature suggests that loss of self is a universal concern across chronic illnesses in general, little consideration has been given to loss of self across physical and mental illnesses. The authors compare loss of self in individuals with a mental illness (early schizophrenia) and in those with a physical illness (chronic kidney disease). In this secondary analysis, focus group data from 2 samples are examined for similarities and differences in the emergent themes. While was an overarching goal for both groups, the strategies for achieving it differed. The participants engaged in activities related to and in order to strike a balance between the demands of the illness and non-illness aspects of their lives. The commonalities in the wish to that were found in both groups indicate that the wish to preserve a sense of self beyond the illness may not be illness-specific. The preliminary results of this secondary analysis suggest that building a positive sense of self in the face of illness is a critical part of illness adjustment and that there are opportunities for nurses and researchers to learn about the spectrum of strategies employed by individuals as they strive to move beyond the illness.

French
Même si les recherches indiquent que la perte d'identité est un thème universel qui concerne l'ensemble des maladies chroniques, peu d'études jusqu'ici ont abordé cette question en comparant la maladie mentale et la maladie physique. C'est ce qui amené les auteures à comparer ce phénomène chez des sujets souffrant de maladie mentale (schizophrénie précoce) et des sujets atteints d'une maladie physique (maladies chroniques du rein) dans le cadre d'une analyse secondaire. Elles ont étudié des données provenant de deux groupes échantillons afin de relever les points communs et divergents des thèmes émergents. Un but commun se dégage chez les sujets des deux groupes, soit de chercher à développer le meilleur de soi-même et à reprendre sa vie en main, mais les stratégies pour y parvenir diffèrent. Pour trouver un équilibre entre les exigences imposées par la maladie et les autres aspects de leur vie, les sujets ont rapporté s'investir dans des activités pour apprivoiser la maladie, s'adapter et se retrouver. Le désir de développer le meilleur de soi-même comportait des points communs dans les deux groupes, ce qui laisse croire que le désir de préserver l'intégrité du soi au-delà de la maladie ne découlerait pas du fait même d'être malade. Les résultats préliminaires de l'étude indiquent que la construction d'une identité positive est un facteur clé du processus d'adaptation à la maladie. Il reste donc beaucoup à apprendre sur l'éventail de stratégies mises en œuvre par les principaux intéressés pour distancer la maladie.

Keywords: CHRONIC KIDNEY DISEASE; EARLY SCHIZOPHRENIA; ENGULFMENT; FOCUS GROUPS; LOSS OF SELF; QUALITATIVE RESEARCH

Document Type: Research Article

Publication date: 2006-09-01

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