Skip to main content

Open Access Categorical Service Allocation and Barriers to Care for Children With Chronic Conditions L'allocation de services par catégorie et les entraves aux soins destinés aux enfants souffrant de maladies chroniques

Download Article:
 Download
(PDF 147.287109375 kb)
 

Abstract:

Parents raising children with chronic conditions face the challenge of locating and coordinating appropriate community-based resources and services for their child. The purpose of this secondary analysis was to determine parents' view of the mechanisms used to allocate health, education, and social services to children with chronic illness and disability and their caregiving families. A thematic analysis was conducted on data from interviews with 30 mothers and 13 fathers. These parents described 11 mechanisms that were used to determine eligibility and/or to ration services: diagnosis, age, technology dependence, severity, functional ability, guardianship status, geographic location, financial resources, judged parental coping, failure to inform parents about available services, and cyclical funding. These mechanisms were complex, inconsistent, and subject to change. Mechanisms that are integrated, proactive, flexible, and fair are needed to reduce parents' workload and to ensure more equitable allocation of services.

French
Les parents qui élèvent des enfants atteints de maladies chroniques font face au défi de trouver et de coordonner les ressources et les services communautaires appropriés pour leur enfant. Cette analyse secondaire avait pour objectif de déterminer l'opinion des parents sur les mécanismes de prestation des services de santé et d'éducation et des services sociaux aux enfants atteints de maladies et d'incapacité chroniques, ainsi qu'aux familles qui s'occupent d'eux. Une analyse thématique a été effectuée à partir des données d'entrevues réalisées auprès de 30 mères et de 13 pères. Les parents ont décrit 11 mécanismes qui étaient utilisés pour déterminer l'admissibilité aux services ou le rationnement de ces derniers : le diagnostic, l'âge, la dépendance à la technologie, la gravité du problème, la capacité fonctionnelle, le statut de tutelle, l'emplacement géographique, les ressources financières, la capacité d'adaptation estimée des parents, le défaut d'informer les parents des services offerts, ainsi que la cyclicité du financement. Il s'agissait de mécanismes complexes, erratiques et sujets au changement. Des mécanismes intégrés, participatifs, souples et justes sont nécessaires afin de réduire la charge de travail des parents et d'assurer une prestation plus équitable des services.

Keywords: CHILD HEALTH SERVICES; CHILDREN WITH SPECIAL HEALTH-CARE NEEDS (CSHCN); CONTINUITY OF CARE; ELIGIBILITY CRITERIA; FAMILY CAREGIVING; HEALTH POLICY; HEALTH-SERVICES ACCESSIBILITY; NONCATEGORICAL; PEDIATRIC CHRONIC ILLNESS; PEDIATRIC DISABILITY; PEDIATRIC HOME CARE

Document Type: Research Article

Publication date: 2005-09-01

More about this publication?
  • To the CJNR Readership:

    We are excited to report that as of January 2016, the CJNR (Canadian Journal of Nursing Research) is being published under the SAGE Publications, Inc. banner.

    All inquiries relating to future issues of CJNR should be directed to:

    Daniel Ruth
    Senior Acquisitions Editor
    SAGE Publications In
    T (805) 410-7251
    E dan.ruth@sagepub.com
    www.sagepub.com

    Currently published issues of the CJNR (1969-2015) are being moved to the McGill online archives where they will be hosted in perpetuity. This migration should be completed by Spring 2016. During this transition, all issues of CJNR remain accessible to our readers as before:

    1) Past issues of CJNR from 2003 to December 2015 through ingentaconnect.

    2) Issues from 2002 to 1969 can be accessed through the CJNR digital archive.

    We understand that this is a significant change. Please be confident that all parties are working diligently to make this a seamless transition that will further advance the scope and impact of CJNR.

    Thank you.
  • Editorial Board
  • Information for Authors
  • Subscribe to this Title
  • Archives
  • Overview / Permissions
  • Ingenta Connect is not responsible for the content or availability of external websites
  • Access Key
  • Free content
  • Partial Free content
  • New content
  • Open access content
  • Partial Open access content
  • Subscribed content
  • Partial Subscribed content
  • Free trial content
Cookie Policy
X
Cookie Policy
Ingenta Connect website makes use of cookies so as to keep track of data that you have filled in. I am Happy with this Find out more