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Living with juvenile idiopathic arthritis: parents' experiences of treatment regimens and home exercise programmes

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Abstract:

The parents of children with juvenile idiopathic arthritis have been identified as pivotal facilitators of children's involvement in treatment regimens, including home exercise programmes. As such, parents' perspectives regarding the factors that influence participation in their children's treatment regimens, and in particular home exercise programmes, are addressed in this study. In depth, semi-structured interviews were conducted with 16 families. Rigour was ensured through a rich description of participants, peer and member checking, field journals and audit trails.

Four key topics related to the process – the experience of the child's diagnosis, community access and participation, treatment regimens and the impact of these regimens on the parent's roles and relationships – and were addressed. Seven key themes emerged, namely the difficult process of diagnosis, the emotional toll, medications, exercises, life revolves around arthritis, parents' relationship with their child and other family members, and parents and paid work. The implications for clinical practice and future research are discussed.

Keywords: EXERCISES; HOME PROGRAMMES; JUVENILE IDIOPATHIC ARTHRITIS; PARENT INVOLVEMENT

Document Type: Research Article

Publication date: June 1, 2009

More about this publication?
  • The British Journal of Occupational Therapy (BJOT) is the official journal of the College of Occupational Therapists. Its purpose is to publish articles relevant to theory, practice, research, education and management in occupational therapy internationally.

    BJOT publishes research articles, critical reviews, practice analyses, opinion pieces, editorials, letters to the editor, book reviews and an annual index. Please refer to the author's guide at http://www.cot.co.uk/british-journal-bjot/british-journal-occupational-therapy

    Submissions can be made at http://mc.manuscriptcentral.com/bjot

    The 2012 Impact Factor for The British Journal of Occupational Therapy is 1.096.

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