Dignity in the life of people with head injuries

Authors: Slettebø, Åshild1; Caspari, Synnøve2; Lohne, Vibeke3; Aasgaard, Trygve4; Nåden, Dagfinn5

Source: Journal of Advanced Nursing, Volume 65, Number 11, November 2009 , pp. 2426-2433(8)

Publisher: Blackwell Publishing

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Abstract:

slettebøå., caspari s., lohne v., aasgaard t. & nåden d. (2009) Dignity in the life of people with head injuries. Journal of Advanced Nursing Abstract Title. 

Dignity in the life of people with head injuries. Aim. 

This paper is a report of a study conducted to determine how people who suffer from head injuries perceive respect for their dignity and to discover what patients mean by the concept of `dignity'. Background. 

We know something about what the phenomenon of dignity means. However, we still lack knowledge about how patients perceive dignity in their lives and how dignity may be fostered and supported. Methods. 

Qualitative interviews were carried out during 2007 with 14 patients suffering from head injuries, diagnosed as having mild to moderate disability. The study was explorative and descriptive, with a content analysis. Findings. 

Patients experienced their dignity as maintained when they were taken seriously, received appropriate information and were reality-oriented. They experienced their dignity as violated if they had been neglected or had encountered healthcare personnel who lacked knowledge, were sceptical about their stories, and where the patient experienced extra burden when they were mistrusted. The importance of adequate information was underscored. As interviewees said, head injuries do not show on the outside and people with head injuries do not have a high status in society. Conclusion. 

Patients living with head injuries should be informed about consequences and be taught strategies for how to live with head injuries as early as possible after the injury in order to maintain dignity.

Keywords: dignity; head injury; nursing; qualitative content analysis; rehabilitation

Document Type: Research article

DOI: 10.1111/j.1365-2648.2009.05110.x

Affiliations: 1: Åshild Slettebø PhD RN Professor Faculty of Nursing Education, Oslo University College, and Faculty of Health and Sport, University of Agder, Arendal, Norwary 2: Synnøve Caspari PhD RN Associate Professor Faculty of Nursing Education, Oslo University College, Norway 3: Vibeke Lohne PhD RN Associate Professor Faculty of Nursing Education, Oslo University College, Norway 4: Trygve Aasgaard PhD RN Associate Professor Faculty of Nursing Education, Oslo University College, Norway 5: Dagfinn Nåden PhD RN Professor Faculty of Nursing Education, Oslo University College, Norway

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