Skip to main content

Hospice patients’ views on research in palliative care

Buy Article:

$51.00 plus tax (Refund Policy)

Abstract Background:

This project was conducted to investigate whether the concerns that researchers have about including terminally ill patients in research were shared by a sample of terminally ill patients. Methods:

Twenty-two patients admitted to a hospice participated in semistructured interviews; 18 patients had advanced malignant disease and 13 were women; their ages ranged from 28 to 93 years. The interview transcripts were analysed for common themes and particular attention was paid to the reasons patients gave for their views. Results:

All the patients wanted to participate in research. Patients advanced one or more of several reasons for participation, the commonest being altruism, enhancement of a sense of personal value, the assertion of persisting autonomy and the value they placed on a commitment by doctors to optimising care by research. They rejected the view that their consent might be non-autonomous and put forward consistent views about what they considered relevant to consent. Conclusions:

Our patients did not share the concerns of ethicists about the difficulties and hazards of research with the terminally ill. These patients’ views are not reflected in the professional consensus.
No References
No Citations
No Supplementary Data
No Data/Media
No Metrics

Keywords: hospice; narrative medicine; palliative care; research ethics

Document Type: Research Article

Affiliations: 1: Faculty of Health, University of Newcastle, Newcastle, New South Wales 2: Faculty of Education, Queensland University of Technology, Brisbane, Queensland, Australia

Publication date: 2006-07-01

  • Access Key
  • Free content
  • Partial Free content
  • New content
  • Open access content
  • Partial Open access content
  • Subscribed content
  • Partial Subscribed content
  • Free trial content
Cookie Policy
X
Cookie Policy
Ingenta Connect website makes use of cookies so as to keep track of data that you have filled in. I am Happy with this Find out more