‘YOU DON'T MAKE GENETIC TEST DECISIONS FROM ONE DAY TO THE NEXT’– USING TIME TO PRESERVE MORAL SPACE

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Abstract:

ABSTRACT

The part played by time in ethics is often taken for granted, yet time is essential to moral decision making. This paper looks at time in ethical decisions about having a genetic test.

We use a patient-centred approach, combining empirical research methods with normative ethical analysis to investigate the patients' experience of time in (i) prenatal testing of a foetus for a genetic condition, (ii) predictive or diagnostic testing for breast and colon cancer, or (iii) testing for Huntington's disease (HD). We found that participants often manipulated their experience of time, either using a stepwise process of microdecisions to extend it or, under the time pressure of pregnancy, changing their temporal ‘depth of field’. We discuss the implications of these strategies for normative concepts of moral agency, and for clinical ethics.

Keywords: Huntington's disease; cancer; decision making; ethics; genetic testing; prenatal testing; qualitative research

Document Type: Research Article

DOI: http://dx.doi.org/10.1111/j.1467-8519.2007.00546.x

Affiliations: University of Basel

Publication date: May 1, 2007

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