Skip to main content

Parental support for newborn screening for cystic fibrosis

Buy Article:

$43.00 plus tax (Refund Policy)

Abstract Aim: 

To describe the attitudes among parents towards including cystic fibrosis (CF) in the newborn screening programme and towards the potential knowledge of their own carrier status. Methods: 

A questionnaire with three to five response categories and an information leaflet was posted to 143 CF parents, 3 matched diabetes and 3 matched population parents, the response rate being 85%, 74% and 70%, respectively. Comparisons between groups were made with statistical tests for independent groups. Results: 

Eighty-six percent of CF, 70% of diabetes and 77% of population parents were in favour of newborn screening for CF, 47%, 45% and 50%, respectively, wished to know their CF carrier status. The parental attitude was independent of the age of the child, as well as delay of diagnosis and well-being of the CF child at the time of diagnosis. Sixty percent of the CF parents experienced the diagnosis as delayed. Conclusion: 

Parents in Sweden support CF newborn screening. Half of the parents wanted to know their CF carrier status.
No References
No Citations
No Supplementary Data
No Data/Media
No Metrics

Keywords: Carrier; Cystic fibrosis; Delayed diagnosis; Neonatal screening; Parental attitudes

Document Type: Research Article

Publication date: 2011-02-01

  • Access Key
  • Free content
  • Partial Free content
  • New content
  • Open access content
  • Partial Open access content
  • Subscribed content
  • Partial Subscribed content
  • Free trial content
Cookie Policy
X
Cookie Policy
Ingenta Connect website makes use of cookies so as to keep track of data that you have filled in. I am Happy with this Find out more